The Leukaemia Foundation is dedicated to improving support to people in the community who have been affected by CLL. It seems that because a diagnosis of CLL does not always require immediate treatment, people are often sent home on a 'watch and wait' program - some people have called it the 'watch and worry' program! Beacuase they do not require active treatment, they are often not referred to support networks like the Leukaemia Foundation to help them when they are back home.

The Leukaemia Foundation are now producing newsletters specific to various disease types. These newsletters are available in hard copy or online. The diseases covered by these newsletters are expanding in the near future. To have a look at our current editions click on the following links:

Lymphoma - http://www.leukaemia.org.au/web/aboutdiseases/lymphomas_newsletters.php;

Myeloma - http://www.leukaemia.org.au/web/aboutdiseases/myeloma_newsletters.php;

MDS - http://www.leukaemia.org.au/web/aboutdiseases/related_newsletters.php.

Amyloidosis - http://www.leukaemia.org.au/web/aboutdiseases/related_newsletters.php

Carer (General LF Newsletter) - http://www.leukaemia.org.au/web/news/carer.php

If you would like any further information, you would like to be involved in the development of these newsletters, you would like to tell your story in one of the newsletters, or you would like to be added to our mailing list, please tell us about it using the feedback section of this site.

The Chronic Illness Alliance in Victoria are promoting a tool for people with a serious illness who run a business. You can access this information at: http://www.business.vic.gov.au/BUSVIC/STANDARD/pc=PC_63065. We would love to hear if you find this information useful: This e-mail address is being protected from spam bots, you need JavaScript enabled to view it .

The Leukaemia Foundation has launched a new support programme for regional patients and families – Telephone Discussion Forums. These forums are designed to allow people who have (or had) a blood cancer to share their experiences, provide tips, education and support to each other in a relaxed forum facilitated by a Support Services team member who has a background in haematology nursing.

Revlimid is now availalbe via the PBS! As of November 1st, people with Myeloma can have confidence in their supply of Revlimid now that the government has agreed to pay for it via PBS. Previously, the drug was only available via a special access scheme through the drug manufacturer - Celgene. Thanks to everyone who worked hard to ensure Australians have ready access to this very important Myeloma medication! Well done.