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Welcome to the Talk Blood Cancer discussion forum. This is a safe place to discuss life with Leukaemia, Lymphoma, Myeloma or a related blood disorder. This foum is a place of support and encouragement. It is moderated by trained staff at the Leukaemia foundation to ensure confidentiality, information safety, and to ensure it remains spam free!
If you have any queries about the site, please contact the Foundation via the feedback tab. Enjoy!! |
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Do you want to be an advocate in research? |
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The Australasian Leukaemia and Lymphoma Group (ALLG) is the leading national cooperative group that specialises in establishing clinical trials for those with a blood cancer. The ALLG is located at Peter MacCallum Cancer Centre, which is one of Australia’s leading cancer trials centres involved in the design, coordination and analysis of cancer clinical trials.
The ALLG is excited to offer a new consumer representative opportunity which will involve review and implementation of ALLG Quality Activities. The role will specifically involve responsibilities for providing consumer feedback and advice to our clinical trials program.
Through developing consumer relations and scoping government and philanthropic opportunities the consumer representative will be an integral team member of the ALLG organisation.
Expressions of interest close 20th August 2010.
Enquiries should be directed to: Delaine Smith, ALLG Operations Manager, ALLG Office,Level 2, 10 St Andrews Place East Melbourne 3002, phone: on (03) 9656 3656 or email:
This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
The ALLG consumer representative fact sheet and expression of interest form are available on the ALLG website at http://www.allg.org.au |
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In the Spring of 2009, more then 21,000 people in 20 capital cities and regional centres carried balloons containing tiny lights to: remember loved ones lost to a blood cancer (gold balloon); celebrate the courage of people with, and survivors of, blood cancers (white balloon); and to give hope by showing people affected by blood cancers that their community cares and supports them (blue balloon). Last year, Light the Night raised $1.3million for people affected by leukaemia, lymphoma, myeloma and related blood disorders.
Light the Night will be back in Spring 2010! For more information, log on to www.lightthenight.org.au. If you would like to host a walk in your local area, call our friendly team on: 1800 500 088 |
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Read more...
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The Leukaemia Foundation in partnership with the Cancer Council have developed a program for people newly diagnosed with a blood cancer to be introduced to a person who has been affected by the same condition and is living well post diagnosis. This program called 'Cancer Connect' allows people in the early stage of diagnosis to ask questions to people who have actually lived the experience of being diagnosed and treated for the disease. If you are newly diagnosed, or if you would like to be trained as one of the 'mentors', please contact your local support services team: 1800 620 420. |
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The Leukaemia Foundation has developed a new newsletter for people who have been affected by CLL. This 8 page newsletter will be issued twice a year with our first issue availalble in May 2010! It contains stories of people with CLL, articles on CLL research and clinical trials, and promotes CLL activities available around the country. If you are not already recieving mail from the Leukaemia Foundation, you will not recieve the CLL News. To ensure you get a copy, register your interest with the Leukaemia Foundation support staff: 1800 620 420. |
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The Leukaemia Foundation are now producing newsletters specific to various disease types. These newsletters are available in hard copy or online. The diseases covered by these newsletters are expanding in the near future. To have a look at our current editions click on the following links:
Lymphoma - http://www.leukaemia.org.au/web/aboutdiseases/lymphomas_newsletters.php;
Myeloma - http://www.leukaemia.org.au/web/aboutdiseases/myeloma_newsletters.php;
MDS - http://www.leukaemia.org.au/web/aboutdiseases/related_newsletters.php.
Amyloidosis - http://www.leukaemia.org.au/web/aboutdiseases/related_newsletters.php
Carer (General LF Newsletter) - http://www.leukaemia.org.au/web/news/carer.php
If you would like any further information, you would like to be involved in the development of these newsletters, you would like to tell your story in one of the newsletters, or you would like to be added to our mailing list, please tell us about it using the feedback section of this site. |
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