Login

Please Login
Welcome, Guest
Please Login or Register.    Lost Password?
Re:ALL+Ph. LA LA LAND (1 viewing) (1) Guest
Go to bottom Post Reply Favoured: 0
TOPIC: Re:ALL+Ph. LA LA LAND
#195
Techno Nan (User)
Posts: 3
graphgraph
User Offline Click here to see the profile of this user
ALL+Ph. LA LA LAND 3 Years, 9 Months ago  
I am 63 and being diagnosed with ALL+Ph in May 2005 came as a great shock after having a routine Blood Test taken. The first few weeks I was in complete denial, not believing this was happening to me as I felt so well until my chemo and treatment started.
Living on the Gold Coast I was sent to R.B.W.H. in Brisbane where I was put on a Clinical Trial called "ALL2 (LALA) Protocol. in conjunction with the drug Glivec.
Total duration of therapy being 30 months. It has now been 18 months since being diagnosed.
I have had my good and bad times in this period, after the initial induction therapy I suffered a Brain Haemorage and some infections which kept me in hospital for a few weeks. Other than that and the usual Nausea that goes along with the chemo I have been doing well. The support given by my wonderful family and the Leukaemia Foundation who have helped enormously with accommodation close to the hospital has been fantastic.
I am now on maintenance therapy and have chemo every 8 weeks along with my daily dose of Glivec.
Fingers crossed everything continues going well.

Techno Nan ( name given to me by my grandchildren)javascript:emoticon(''
 
Report to moderator   Logged Logged  
  The administrator has disabled public write access.
#196
lilian (User)
Posts: 134
graphgraph
User Offline Click here to see the profile of this user
Re: ALL+Ph. LA LA LAND 3 Years, 9 Months ago  
Welcome Techno Nan - what a great name!

Lilian
 
Report to moderator   Logged Logged  
 
Moderator - Leukaemia Foundation www.leukaemia.org.au
  The administrator has disabled public write access.
#7078
Cheesy Puff (User)
All you need is love.
Posts: 9
graphgraph
User Offline Click here to see the profile of this user
Gender: Female Location: Adelaide, Australia
Re:ALL+Ph. LA LA LAND 5 Months, 1 Week ago  
Techno Nan (great name ),

I wish you all the best through this time. My dad has recently also been diagnosed with +Ph ALL, and I understand how much of a rollercoaster it can be for both patients and families. My thoughts are with you

Lots of love,

Cheesy Puff
 
Report to moderator   Logged Logged  
 
My 49-year-old daddy was diagnosed with +Ph ALL in early March 2010.

You may fancy yourself safe, and think yourself strong...
  The administrator has disabled public write access.
#7588
Jenna31 (User)
Posts: 1
graphgraph
User Offline Click here to see the profile of this user
Re:ALL+Ph. LA LA LAND 1 Month, 2 Weeks ago  
Hey,
Yeah im 18 and was diagnosed with Ph+ ALL a couple of months ago, definatly how it feels and all the rollarcoaster emotions and have a huge ups and downs, especially when two weeks after i was diagnosed and my port broke and leaked chemo in to my neck, i'll never ever forget that pain Im on Glivec or Imatinib aswell, seems to be working really well for me

Jenna

Love the name Techno Nan
 
Report to moderator   Logged Logged  
  The administrator has disabled public write access.
Go to top Post Reply
Powered by FireBoardget the latest posts directly to your desktop